Meeting

Dex is holding steady at 98. Definitely no need to check before I walk into what should be a really quick meeting. 

Oh shit, why is my heart is pounding? Are my hands visibly shaking? I'm going to pass out, should I excuse myself? No, no, this is just straight up paranoia, try breathing slower. For fucks sake why is everyone talking so slow? I haven't taken insulin since lunch, 3 hours ago. Why would I be low right now? Dex, hello catch up here, confirm that I need to be freaking out and then I'll get up and get something. Okay okay we're wrapping up, oh god no she's asking another question. Stop with the questions, I'm dying here! Can't you see the sweat on my forehead? Okay okay okay, walk quickly but not too quickly, you're not going to pass out you're fine, you're fine. Get sugar, get sugar, get sugar. Here we are, sugar in the mouth. Panic subsiding, 53 not terrible. 

Whew, that was a stressful meeting and I'm not even sure what was discuss. Or what I agreed to do. 

Nightmare

After a major rage-correction to a low blood sugar (think honey stingers plus two oatmeal cookies) I went to bed with my Dex telling me I was heading north. So it was not a terrible surprise when 3 hours later my Dex was waking me up telling me I had climbed to 339. Now I haven't been in the 300 hundreds in a couple weeks, and I really try to avoid it at all costs. So I diligently got up at 2am and made a correction, and promptly fell back to sleep only to have a nightmare about my high number. I dreamed that despite my very tight control lately the doctor told me my eye sight was getting worse. He told me that there was nothing I could do and that no amount of control would stop the progression of my disintegrating retinas. He then showed me a photo of the back of my eyes where there were a million little read dots and black skull and cross bones. Yes, a black skull and cross bones. I woke up in the middle of this whimpering and sweaty. 

I haven't really acknowledge how much my recent optomologist visit has affected me mentally. Yes, it has scared the shit out of me gotten me to really gain a serious control over The Beast. But it also has really scared me down to my core, made me think about how much I could lose just because I have really bad luck and have Diabetes. And it really sucks. Like really really fucking sucks. 

TSA Fail

Like I've said I have been dealing with The Beast for 17 years. During that time I lived overseas, I went to college a flight away and have traveled on so many occasions I cannot count. I know the drill when it comes to flying and am always fully prepared. Like all diabetics wearing a Dexcom & pump I cannot go through the body scanners and while sometimes by sheer luck I am sent through the metal detector line more often then not I end up getting up close and personal with a TSA agent for a pat down. While this is not my favorite thing I totally recognize the importance of security especially in this day and age and realize that everyone is just doing there job. I am always patient, understanding and 100 percent cooperative. And this strategy has never failed me, I usually get someone who is friendly and understands the basics of diabetes and after some patting and some testing of my devices I'm on my way to enjoy the rest of my flying experience. 

In late september I was flying back to Boston via the Charleston airport and was expecting all to go according to plan. I told the agent I was wearing my devices and needed to opt out of the scanner. OK, fine, all is good. I stand to the side for a moment and a female TSA agent comes to collect me and my things. We stand off to the side and she tests my hand and my pump for explosive materials. After a few seconds the screen turns red and beeps like crazy. Okay, thats not great. I knew right away this experience was going to be different and because of that first faulty reading I needed to be super careful and vigilant. I've heard of people getting sucked into long detainments at the airport due to things like this so immediately my guard was up. 

The TSA agent panicked, and honestly rightfully so it's not something I've ever seen before, and called over her manager. They agreed to the retest on another machine and then do a pat down. The re-test went fine, everything was clear and the pat down is where the trouble began. The agent asked me repeatedly to remove my infusion set and Dexcom transmitter. Calm, cool and collected I told her that I cannot, that this is standard procedure and she should proceed. It was very clear at this point she had no idea what she was doing and was terribly confused. I was starting to get pretty frustrated when she asked if I had something else in the back of my jeans, I did not. When she finished the pat down she told me she would need to see my sites. 

This is where things take a turn. This is completely illegal. For anyone who is unaware under no circumstances should a TSA agent ask to see any part of your skin. No procedure should ever entail you lifting or lowering any of your clothing to revel a port or infusion site. I knew this, but I didn't actually know my rights. I stated how uncomfortable I was with this and said no. But she insisted and I honestly wasn't looking forward to missing my flight, or being detained alone in Charleston. I should have asked to speak with a supervisor but I didn't. I clenched my fists, bit my tongue and went into a private screening room. I showed her my Dexcom site as well as my infusion set, which by the way were on my lower back/upper butt-ish. AWKWARD. Also again, completely unnecessary and completely illegal. 

When she finally let me go I was so mad at myself for allowing that to happen. I should have insisted that this wasn't part of protocol. I should have known my rights, I should have asked for a supervisor I should have demanded someone else. But instead I grinned and bared it. I filed a complaint immediately and was actually contacted by the head of TSA at the Charleston airport. She was very nice and apologized, said this was a total breach in protocol and that the agent has been spoken too and was also retrained. So it has been resolved. But boy do I feel wary of my next traveling experience, at least this time I will know my rights. 

Betes-obsessed

So here is the thing about my diabetes, for the better part of the past 17 years I've been pretty convinced that this was a huge mistake. Now don't get me wrong, I've been getting by. Doing my thing enough so that no one really was concerned with my mediocre A1C's. They were fine, not great but fine. Because this whole diabetes thing it's really not for me. I'm not supposed to have diabetes, this wasn't supposed to happen to me. I'm a really normal 27 year old and this past 17 years have all just be a terrible terrible mistake. This isn't my life, I'm not going to lose a limb, I'm not going to have heart issues or kidney issues or lose my eye sight. I'm not because, like I said, this wasn't meant to happen to me. Diabetes is a fluke, just some weird bad luck but it ends there. 

But all that changed 3 months ago. I was at my yearly ophthalmologist appointment (absolutely my least favorite doctors appointment), and when the doctor was finishing up and taking some final notes and turned to me and said okay lets go over this. Um, go over what? Never have we ever gone over anything. And that was it, that simple sentence that changed everything. I know, you've heard it before, maybe you've even been there, sitting in that chair it's the quintessential "holy fuck" moment of a diabetic. But holy fuck. 

So here we are now 3 months later and officially betes-obessed. I'm on a mission to fully understand this disease that I in fact DO have, and control it to the best of my ability. If it means obsessing about low carb meals and turning down cupcakes, if it means analyzing data and constantly watch my dex. Then so be it. Because I may have diabetes, but that doesn't change the fact that I'm not going to lose a limb or have heart issues or kidney issues or lose my eye sight. I'm not.